Information leaflets for patients and healthcare professionals

Information relating to the notification of individuals is available in the following documents. These can be downloaded in pdf format.

We have prepared two leaflets for patients

Information for people who have an increased risk of CJD - August 2009 (PDF, 70 KB)

Who has an increased risk of CJD ? - January 2010 (PDF, 72 KB)

The Association of British Insurers has published a leaflet, Information about insurance for people at risk of CJD [external site]

We have also prepared two information leaflets for doctors and healthcare staff

CJD: Background information for healthcare staff - June 2010 (PDF, 110 KB)

CJD: Actions for healthcare staff - April 2011 (PDF, 108 KB)

Public health advice on how to stop CJD spreading to other people

This advice is for people who have been identified as being at increased risk of CJD. To reduce the risk of spreading CJD to other people please follow this advice:

• Don't donate blood, No-one who is at increased risk of CJD or who has received blood donated in the United Kingdom since 1980 should donate blood.
• Don't donate organs or tissues, including bone marrow, sperm, eggs or breast milk.
• If you are going to have any medical, dental or surgical procedures, tell whoever is treating you beforehand so they can make special arrangements for the instruments used to treat you.
• You are advised to tell your family about your increased risk. Your family can tell the people who are treating you about your risk of CJD if you need any medical or surgical procedures in the future and are unable to tell them yourself.
  

Last reviewed: 21 July 2010